Hello World!
Ok so if you are part of the Cystic Fibrosis community you most definitely heard about the new policy being implemented by the Cystic Fibrosis Foundation. The new policy states only 1 person with CF will be allowed to attend any indoor event. And the 6ft policy applies to all outdoor events.
Now I don't have a problem with the outdoor policy. But the indoor policy... bullshit! How can you ban people with the disease you are fighting to cure? How can you tell people what they can and can't do? How???
I get it, germ control. Well I'm not going to events to make out with other CFers. I don't got to events to cough or be coughed all over. I go to events to raise money for a cure. To show support to other CFers going through the same shit. Unless you have CF you don't know. We aren't allowed to have support groups, now you want to take away from fundraising events?
Bogus.
Its also discrimination. You can't exclude a group of people for something they can't change. Thats wrong. How dare you take away my right and choice to attend an event? CFers aren't stupid. We are probably more aware of germs, and whos sick around us than a "Normal" person. We have to deal with this everyday.
Masks, gloves, make EVERYONE wash their hands when they enter the event. There are other ways to go about infection control.
You know CFers can get sick from ANYBODY nit just other CFers. They can carry all the same bugs we do, their body just handles it better. So whats next, no events at all?
I am pissed. I don't like being isolated for something I was born with. Its my life. I should get to decide if I want to "risk it" at a CF event, not you. I will NEVER live in a bubble afraid of the world.
We are human beings. NOT a disease.
Breathe Easy
Live Life then Give Life, Please be an Organ Donor.
Friday, March 15, 2013
Monday, March 11, 2013
Praying to the Knee Gods
Hello World!
Do you know how hard it is to find a job after being out of work 5 years??
I got a job at Petco for a brief moment. But the people there were just not good people. I'm not someone who will just "do a job." I value my time too much. Which most people will say "beggars can't be choosers." Well I'm not begging. So I get to be choosy!
I just want a job I enjoy, and be able to support myself. I know its possible. Its just frustrating. Some one close to me gave me a nice piece of insight recently, she told me that maybe I haven't found the right job yet because the universe (or God if thats your thing) is giving me this time with my Dad. Not working allows me to spend time with him more. Even if that time is just sitting in the same room watching The Chew. I do value that time. And as he gets worse its always in the fore front of my brain. He may be a many of many words, but they are usually wise words.... or hes making fun of you. Either way I like it!
So I'll continue the job hunt, looking for something that fits me... and I don't have to fit the job. Hopefully something comes along soon though! :)
In other news, I'm digging the warm weatherrrr! Spring and summer are my favorite seasons. I can't wait to get out on the boat again! AND ride a jet ski again! I haven't been able to in years because of my O2 tanks... not anymore!!
In my last post I mentioned I signed up for my first 5K - very exciting! Well I have my first running injury!! Can you believe it! Me... with a running injury!! I can't even believe it! So cool.
Well both my knee joints are close to being shot, thats no fun. No running for 2 weeks and I have some regiment I have to follow that involves ice and stretching and all that hoopla. Hopefully they will be better and I can start running again, or this race is REALLY going to kick my newly growing (thats right 102lb these days baby!) booty!
So if everyone could just send a thought to the Knee Gods, I'd appreciate it.
On twitter recently I've learned of a small warrior.... yes warrior. I had to wait 2yrs 2 months and 2 days for my transplant. Riley O'Brien waited 3yrs 3 months 3 weeks 3 days for his transplant. Riley is 4 years old. He receive a new heart and 2 lungs. Like I said WARRIOR. All my good thoughts go to him right now as he recovers. He has a long of recovery ahead but he has support from across the globe. You can follow him at @Smile4Riley or find them on Facebook " Smile 4 Riley."
Now, go out and register to be an organ donor. You never know what might happen to you the next day. Don't let your wishes go unheard. Talk about, write down, register! It doesn't have to be a morbid subject. Its called the Gift of Life for a reason. Please, if you haven't already, register. www.donatelife.net It takes a matter of seconds... 2 minutes tops depending your internet speed.
Breathe Easy
Do you know how hard it is to find a job after being out of work 5 years??
I got a job at Petco for a brief moment. But the people there were just not good people. I'm not someone who will just "do a job." I value my time too much. Which most people will say "beggars can't be choosers." Well I'm not begging. So I get to be choosy!
I just want a job I enjoy, and be able to support myself. I know its possible. Its just frustrating. Some one close to me gave me a nice piece of insight recently, she told me that maybe I haven't found the right job yet because the universe (or God if thats your thing) is giving me this time with my Dad. Not working allows me to spend time with him more. Even if that time is just sitting in the same room watching The Chew. I do value that time. And as he gets worse its always in the fore front of my brain. He may be a many of many words, but they are usually wise words.... or hes making fun of you. Either way I like it!
So I'll continue the job hunt, looking for something that fits me... and I don't have to fit the job. Hopefully something comes along soon though! :)
In other news, I'm digging the warm weatherrrr! Spring and summer are my favorite seasons. I can't wait to get out on the boat again! AND ride a jet ski again! I haven't been able to in years because of my O2 tanks... not anymore!!
In my last post I mentioned I signed up for my first 5K - very exciting! Well I have my first running injury!! Can you believe it! Me... with a running injury!! I can't even believe it! So cool.
Well both my knee joints are close to being shot, thats no fun. No running for 2 weeks and I have some regiment I have to follow that involves ice and stretching and all that hoopla. Hopefully they will be better and I can start running again, or this race is REALLY going to kick my newly growing (thats right 102lb these days baby!) booty!
So if everyone could just send a thought to the Knee Gods, I'd appreciate it.
On twitter recently I've learned of a small warrior.... yes warrior. I had to wait 2yrs 2 months and 2 days for my transplant. Riley O'Brien waited 3yrs 3 months 3 weeks 3 days for his transplant. Riley is 4 years old. He receive a new heart and 2 lungs. Like I said WARRIOR. All my good thoughts go to him right now as he recovers. He has a long of recovery ahead but he has support from across the globe. You can follow him at @Smile4Riley or find them on Facebook " Smile 4 Riley."
Now, go out and register to be an organ donor. You never know what might happen to you the next day. Don't let your wishes go unheard. Talk about, write down, register! It doesn't have to be a morbid subject. Its called the Gift of Life for a reason. Please, if you haven't already, register. www.donatelife.net It takes a matter of seconds... 2 minutes tops depending your internet speed.
Breathe Easy
Saturday, March 2, 2013
Been A Little Bit
Hello World!
I bet you thought I forgot about you..... NOPE!
Just been been busying. February just flew by. Turned out to be an up and down month for me. I'm not working anymore, but the job search. Still hopeful I find something perfect. I liked working at Petco, but the people there just weren't for me. Not sure what I want to be when I grow up so I'm still searching. It would be great to find a job where I could actually use my college degree. Its not easy putting together a resume when I haven't worked in so long. Right after I graduated in May 2009 I ended up in a coma in Sept.... so needless so say there is no experience here haha. I could change a dressing, distribute meds oral and IV, show you have to shower/bath without getting IVs wet, administer feeding, set up IV or Feed Tube pump, change a mickey button, use a bipap machine, count calories, eat til I puke then eat again because I just wasted all those calories, handle a coughing attack which leads to puking while driving, But those aren't really skills people want on an application. So I feel a little stuck. I just need one person to take a chance on me. I'm a good worker, its in my blood!
I also celebrated my 27th birthday this month! So awesome. One of my best friends happen to have a birthday 2 days after mines. So we did a joint birthday bash. It was fun. Lots of laughs, yelling, game playing, and just a smidge bit of drinking. It was great. One of my other best friends took me out to dinner on my birthday too. That was fun, got to meet a lot of new people and eat CHINESE FOOD!
So thankful to celebrate my 27th birthday. In Sept 2009, the doctors weren't sure I was going to make it out of that coma, so Feb 2010 was my 24th birthday, I was so so so thankful for that day and since then my birthday wish was always to just make it to the next one, just give me one more year. Since I got my transplant in July 2012, I'm free to wish a little bigger this year. For that reason alone I'm forever in debt to my donor. They saved my life.
Oh hey, I signed up for my first 5K ever.
Yes, me, I really did it. A good friend named Gabe, who also happens to have CF and also happens to be less than a yr post transplant and bulletproof, asked me if I would do this with him. I was really not sure at first. I have NEVER been a runner. I usually give people with "run for fun" grief. So I mentioned to a few people I was thinking about doing this and everyone one of them said I was nuts and no way could I do it.... so I committed that day. Don't ever tell me something is crazy and I can't do it. Do you just meet me? Read MY story. Don't doubt me. Ever. I can and will complete this race. Will I be able to run the whole thing, probably not. But it won't stop me from trying. I'm a pretty stubborn person when it comes to these things. I don't like to quit, take the easy, or worse not ever try. That's just not me and never has been.
Ever pre-transplant when I had an oxygen tank to lug around, tube feeds to do, and a wheelchair I went boating, attempted hiking, little bit of swimming - all that junk wasn't going to stop me then. Nothing can stop me now.
Live it up, Laugh at yourself, Be kind to others, and Dream the impossible.
Oh and happy 30th birthday to my brother Jason!!! You're my favorite red-head!
I bet you thought I forgot about you..... NOPE!
Just been been busying. February just flew by. Turned out to be an up and down month for me. I'm not working anymore, but the job search. Still hopeful I find something perfect. I liked working at Petco, but the people there just weren't for me. Not sure what I want to be when I grow up so I'm still searching. It would be great to find a job where I could actually use my college degree. Its not easy putting together a resume when I haven't worked in so long. Right after I graduated in May 2009 I ended up in a coma in Sept.... so needless so say there is no experience here haha. I could change a dressing, distribute meds oral and IV, show you have to shower/bath without getting IVs wet, administer feeding, set up IV or Feed Tube pump, change a mickey button, use a bipap machine, count calories, eat til I puke then eat again because I just wasted all those calories, handle a coughing attack which leads to puking while driving, But those aren't really skills people want on an application. So I feel a little stuck. I just need one person to take a chance on me. I'm a good worker, its in my blood!
I also celebrated my 27th birthday this month! So awesome. One of my best friends happen to have a birthday 2 days after mines. So we did a joint birthday bash. It was fun. Lots of laughs, yelling, game playing, and just a smidge bit of drinking. It was great. One of my other best friends took me out to dinner on my birthday too. That was fun, got to meet a lot of new people and eat CHINESE FOOD!
So thankful to celebrate my 27th birthday. In Sept 2009, the doctors weren't sure I was going to make it out of that coma, so Feb 2010 was my 24th birthday, I was so so so thankful for that day and since then my birthday wish was always to just make it to the next one, just give me one more year. Since I got my transplant in July 2012, I'm free to wish a little bigger this year. For that reason alone I'm forever in debt to my donor. They saved my life.
Birthday Shots!
My Dream Team!
Oh hey, I signed up for my first 5K ever.
Yes, me, I really did it. A good friend named Gabe, who also happens to have CF and also happens to be less than a yr post transplant and bulletproof, asked me if I would do this with him. I was really not sure at first. I have NEVER been a runner. I usually give people with "run for fun" grief. So I mentioned to a few people I was thinking about doing this and everyone one of them said I was nuts and no way could I do it.... so I committed that day. Don't ever tell me something is crazy and I can't do it. Do you just meet me? Read MY story. Don't doubt me. Ever. I can and will complete this race. Will I be able to run the whole thing, probably not. But it won't stop me from trying. I'm a pretty stubborn person when it comes to these things. I don't like to quit, take the easy, or worse not ever try. That's just not me and never has been.
Ever pre-transplant when I had an oxygen tank to lug around, tube feeds to do, and a wheelchair I went boating, attempted hiking, little bit of swimming - all that junk wasn't going to stop me then. Nothing can stop me now.
Live it up, Laugh at yourself, Be kind to others, and Dream the impossible.
Oh and happy 30th birthday to my brother Jason!!! You're my favorite red-head!
And check out Gabe's Blog, also called Breathe Easy! https://gwpoland.wordpress.com/
Breathe Easy
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