tag:blogger.com,1999:blog-5872117261912836646.post5978418896867408528..comments2023-07-16T11:16:29.596-04:00Comments on Breathe Easy: Lonelyjbenj219http://www.blogger.com/profile/04541310635493981496noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5872117261912836646.post-29537794322933792062011-03-27T14:46:21.438-04:002011-03-27T14:46:21.438-04:00Hi I just wanted to say I can relate to you. I wai...Hi I just wanted to say I can relate to you. I waited 9 months at one Center before they told me they didnt think there was time to transplant me so I moved my butt to NC where it was about 2 months and I got my life back. Life now is so different and amazing and hard at the same time. I hope you get called soon, with the perfect set for youJesshttps://www.blogger.com/profile/08191778309873176164noreply@blogger.comtag:blogger.com,1999:blog-5872117261912836646.post-10581094440453209462011-03-26T12:45:42.735-04:002011-03-26T12:45:42.735-04:00Hi there!! I found this post through Beth Peters ...Hi there!! I found this post through Beth Peters on twitter:-) I can't imagine the loneliness this disease brings when you can't have a support group with others going through the same trials. I think things like twitter are so great so you can now have that support!! We are both nurses and sisters and we wish you strength!! Get luck with getting a transplant too:-)<br /><br />Anna & Selena<br />www.annieandisabel.comSelena and Annahttps://www.blogger.com/profile/18145906394298967359noreply@blogger.comtag:blogger.com,1999:blog-5872117261912836646.post-72782921436848213912011-03-26T01:26:57.050-04:002011-03-26T01:26:57.050-04:00Jess, the culture of silence surrounds a lot of me...Jess, the culture of silence surrounds a lot of medical conditions. Most of my friends don't know I have epilepsy, mostly because of my embarrassment. On one hand it's a shame because its a circular thing - if more people disclose, it's more likely that more will disclose etc. But then again, when you tell people you have a chronic illness, there is a subtle change in the way they treat you, do you find? <br /><br />It's a shame that you can't mix with other CFers. I never knew that. Twitter reigns again!Lucyhttps://www.blogger.com/profile/14606784865702317737noreply@blogger.com