Hello World!
I hope everyone had a great week and weekend. Mine had some ups and downs. Some ups: I took my first exam for my program and got a 93! I should of got a 100 but I read a question to fast and made a silly mistake. I was over confident. But 93 is good too! The weather was a little crazy one day but over in my favor all week which was lovely. Because of the nice weather I'm getting a nice summer tan! Always better than being pale! One of my best friends came up and visited me Friday which was great. I hadn't seen her in a while, so it was nice to just chitchat and catch up.
Some downs: I was carless all week! Both my parents have to have the cars inspected in May, so they needed to borrow mine while theirs was getting fixed. I was glad to let them use it. no biggy, but it left me carless! Haha. Good thing Transplant didn't call! Another down is a biggy.
For almost 2 years I was so thin and sick that I didn't get my period. My body just wasn't healthy enough to menstruate. Well it finally made a return in December. Its not regular, but hey its a start! It means I'm getting better! :) But the sucky part is, is creates havoc for my body.
I only have my period for a few days (may be an over share, but whatevs! it happens!). For a week before it come my chest becomes really tight and congested, I lose any appetite I have and just become overall really tired. It has cause me to be hospitalized for IVs 3 times because of the pre-period crap my body goes through.
Well this week was no different. I was doing great, three GOOD meals a day, getting up and out more. I was really feeling good. Then one morning I slept about an hour longer than I had been and wasn't really hungry that day. I didn't think much of, one day, whatever. But I slept even later the next and didn't really eat that day. I knew it was coming. Next thing, I'm coughing myself awake for 3 nights now! I'm very tired and not hungry at all! Every girl hates their period but mine is killing me!!!
I have clinic tomorrow. I know its not going to be great. I'm just hoping they don't mention the big "H!"
Breathe Easy
Live Life then Give Life, Please be an Organ Donor.
Sunday, June 5, 2011
Wednesday, June 1, 2011
Memorial Day
Hello World!
How was everyone's Memorial Day weekend?? Mine was wonderful. It was spent with friends and family. Can't beat that. Here are some pictures of my dogs and a few twitter friends dogs in the Memorial Day best...
How was everyone's Memorial Day weekend?? Mine was wonderful. It was spent with friends and family. Can't beat that. Here are some pictures of my dogs and a few twitter friends dogs in the Memorial Day best...
Cody!
Fudd!
1 week old French Poodle Puppy! No name yet.
Lucy (top), Tucker, Ruby, Max, and Shotti... My babies!
I have also recently enrolled in a program to become a Certified Dog Trainer/Instructor! I am so excited. I have finally figured out what I'm passionate about, dogs. Once I'm certified I'll be able to work some place training dogs and maybe even start my own buisness. The overall dream is to open my own facility with dog training, doggy daycare and boarding! I may even learn how to properly groom dogs. Not sure about that yet. I have heard it is pretty physical. So we will see. But right now I'm just excited to be headed down a road that will be there post transplant!
Breathe Easy
Thursday, May 26, 2011
Our Garden
Hello World!
As I have mentioned before in 2009 I was in the ICU on a ventilator for almost month. Everyone deals with stress in different ways. My Dad deals with it by keeping busy. He has to have something to do. While I was very sick he started planting a garden. The garden was originally going to be mine but I got sick before I could do anything with it. So he started planting. Now the garden is a project we work on together. This year we have many things blooming! I'm not good with the names of plants I just go for what they look like. I also love color! Here are some our flowers that have bloomed...
Breathe Easy
As I have mentioned before in 2009 I was in the ICU on a ventilator for almost month. Everyone deals with stress in different ways. My Dad deals with it by keeping busy. He has to have something to do. While I was very sick he started planting a garden. The garden was originally going to be mine but I got sick before I could do anything with it. So he started planting. Now the garden is a project we work on together. This year we have many things blooming! I'm not good with the names of plants I just go for what they look like. I also love color! Here are some our flowers that have bloomed...
Monday, May 23, 2011
Naner, Naner, Naner!
Hello World!
SOOO its been kind of a busy few days/weeks. I love being busy but MAN its exhausting! Haha. My family opened up our Lake House on May 15th... This past weekend I officially moved my stuff in and made myself comfortable in my summer crash pad. I LOVE the lake. Our house is on Lake Winnipesaukee. It is my favorite place in America.... I specify America because Aruba is probably my favorite place on the planet.
Because I don't work or have school I get to stay at the Lake House all the time. My parents and brother only come up on the weekends usually because they have to work during the week... Naner Naner Naner!!This summer I'll be taking Lucy up with me as well as Tucker. Tucker came up and stayed with me last summer. I love my pack of poochies but it was nice just me and Tucker during the week and then the rest of the pack came up on the weekends. It'll be fun!
We had our first small get together this weekend. We had lobsters, steamers, and steak! YUMMYY! It was so good. And I'm glad I have my appetite back because I ate about a pound of steamers then 1.25lb lobster and then a piece of steak, some beans, cottage cheese, and corn!! WOOOOO!! I finished it all off with a brownie and piece of peanut butter pie! God, I love having an appetite. We had this delicious lunch/dinner for my Grandma's birthday! She turned 83 on May 16. And she is going strong. The rate she is going she may out live me! Haha. I love her, she is awesome.
As for medical 'news,' haha, my 1 year check-up appointment with the Transplant team went well. I had to update some tests and just have a check-up. I have to have another check-up in 4 months. HOPEFULLY by then I'll have my new lungs and won't need that appointment. That would be stellar! I have a couple more days of IVs to finish up at home. Then I can be deaccessed!! YAYYYY!!! I'm hoping this hospital stay will be the only one this summer and I can make it until the fall before I need another. I would like to be able to enjoy the next few months and not be sick. So please, please, please, CF God let me stay in good condition!
Breathe Easy
SOOO its been kind of a busy few days/weeks. I love being busy but MAN its exhausting! Haha. My family opened up our Lake House on May 15th... This past weekend I officially moved my stuff in and made myself comfortable in my summer crash pad. I LOVE the lake. Our house is on Lake Winnipesaukee. It is my favorite place in America.... I specify America because Aruba is probably my favorite place on the planet.
Alton Bay, NH - Sunset
Because I don't work or have school I get to stay at the Lake House all the time. My parents and brother only come up on the weekends usually because they have to work during the week... Naner Naner Naner!!This summer I'll be taking Lucy up with me as well as Tucker. Tucker came up and stayed with me last summer. I love my pack of poochies but it was nice just me and Tucker during the week and then the rest of the pack came up on the weekends. It'll be fun!
We had our first small get together this weekend. We had lobsters, steamers, and steak! YUMMYY! It was so good. And I'm glad I have my appetite back because I ate about a pound of steamers then 1.25lb lobster and then a piece of steak, some beans, cottage cheese, and corn!! WOOOOO!! I finished it all off with a brownie and piece of peanut butter pie! God, I love having an appetite. We had this delicious lunch/dinner for my Grandma's birthday! She turned 83 on May 16. And she is going strong. The rate she is going she may out live me! Haha. I love her, she is awesome.
As for medical 'news,' haha, my 1 year check-up appointment with the Transplant team went well. I had to update some tests and just have a check-up. I have to have another check-up in 4 months. HOPEFULLY by then I'll have my new lungs and won't need that appointment. That would be stellar! I have a couple more days of IVs to finish up at home. Then I can be deaccessed!! YAYYYY!!! I'm hoping this hospital stay will be the only one this summer and I can make it until the fall before I need another. I would like to be able to enjoy the next few months and not be sick. So please, please, please, CF God let me stay in good condition!
Breathe Easy
Monday, May 16, 2011
Quick Update
Hello World!
Stuck in the hospital still. This visit we, being me and my doctor, decided to try some new medications. Well the first couple of days weren't good. I had some weird side effects to 2 of the medications, Colistin and Doripenum. I was feeling just weird, and off balance. Its hard to explain. But I didn't enjoy the weirdness. So the dosage had to be changed. Thankfully they figured it out and all systems are go! I ad PFTs today, Pulmonary Function Test, they were good. I'm up in percentage and my weight is up as well! Overall heading in the right direction. On Friday I have a check-up with my transplant team.
Breathe Easy
Stuck in the hospital still. This visit we, being me and my doctor, decided to try some new medications. Well the first couple of days weren't good. I had some weird side effects to 2 of the medications, Colistin and Doripenum. I was feeling just weird, and off balance. Its hard to explain. But I didn't enjoy the weirdness. So the dosage had to be changed. Thankfully they figured it out and all systems are go! I ad PFTs today, Pulmonary Function Test, they were good. I'm up in percentage and my weight is up as well! Overall heading in the right direction. On Friday I have a check-up with my transplant team.
Breathe Easy
Tuesday, May 10, 2011
Love Ya Ma!
Hello World!
What great weather we have had the last few days! Just wonderful. I even got a little color on my shoulders, how exciting! Haha. Last week went well, no big news or stories to tell. Although I am back in the stinky hospital. BOOOO! Hopefully it'll be a quick visit. I went to a family BBQ Sunday for Mother's Day. It was nice. Some rain kept us inside most of it, but overall a good BBQ.
As mentioned Sunday was Mother's Day. I would just like to say HAPPY MOTHER'S DAY to my mom and all teh other moms out there. My mom is the rock in our family. Both my brother and muself have Cystic Fibrosis that she has to deal with. But on top of that in June 2009, my Dad was diagnosed with a stage 4 terminal Cancer. She has to deal with TONS of medical issues. She is never seems to crack and always stays positive. She refuses to let these set back get her down, and powers through it everyday. She is able to walk through life with such grace. I can't wait to be in a position to give back and be able to help her in a way that she has elped me. She is an AMAZING lady!! Woot, Woot! Love ya Mama!
What great weather we have had the last few days! Just wonderful. I even got a little color on my shoulders, how exciting! Haha. Last week went well, no big news or stories to tell. Although I am back in the stinky hospital. BOOOO! Hopefully it'll be a quick visit. I went to a family BBQ Sunday for Mother's Day. It was nice. Some rain kept us inside most of it, but overall a good BBQ.
As mentioned Sunday was Mother's Day. I would just like to say HAPPY MOTHER'S DAY to my mom and all teh other moms out there. My mom is the rock in our family. Both my brother and muself have Cystic Fibrosis that she has to deal with. But on top of that in June 2009, my Dad was diagnosed with a stage 4 terminal Cancer. She has to deal with TONS of medical issues. She is never seems to crack and always stays positive. She refuses to let these set back get her down, and powers through it everyday. She is able to walk through life with such grace. I can't wait to be in a position to give back and be able to help her in a way that she has elped me. She is an AMAZING lady!! Woot, Woot! Love ya Mama!
Older Bro, Jay and Mom
Me and Mama
Little Bro, Ryan and Mom
Breathe Easy
Tuesday, May 3, 2011
Holy Hook-Up Batman!
Hello World!
I had my monthly CF clinic yesterday. Didn't go great. I figured as much though. For the past week or so I've needed more oxygen and I've been more tired than usual. The extra O2 helps combat the fatigue but its annoying. I hate have no energy to do things. I miss the days I could just spring up from bed in the morning and go go go. Now when I wake up, I have to lay there for 5-10mins, then sit up for 5-10mins, THEN I can get out of bed and move around my room. But I still need to take my time because, my room is located downstairs, so after getting up my first task is a flight of stairs. HOLY MOLY! Hhaha. Its good for me, just tiring. I tend to have a coughing freakout when I get to the top of the stairs. Its ridiculous, I use to be able to run up the stairs, now I can barely walk. So Lame! I coughed up some blood the past 2 days as well. Thats always a great sign, haha. Thankfully it seems to have stopped. My PFTs were down about 8% which isn't good at all, but I actually expected it. My weight was stable which is GREAT! I mean gaining weight would be phenomenal but the fact that I didn't lose any in a month is fantastic news!!
So the game plan is a hospital visit for a clean out. I'll be going in next Monday, the 9th. I have 5 'bugs' in me right now. 3 staph, with MRSA, and 2 pseudos. My pseudos are resistant to EVERYTHING! I love to harbor the worst of the worst, haha. My doc said he is going to try a new med with me, something like, Doripenum? Anyone had that before? He said it has to be dripped in over 4 HOURS 3X A DAY! Holy Hook-up Batman! I guess I'll be getting real cozy with my pole haha. Hopefully it works and kicks some CF-Buggy-Butt! I would like to be hospital free this summer so I can actually enjoy my summer!
I don't have any complaints outside the typical CF whining. I have a family BBQ this sunday to attend. It should be fun. Sunday is also Mother's Day! Not sure what I'm doing for my Mama yet but I'll think of something. May 2nd was my Dads birthday! Happy Birthday Pop! In Tucker news, I brought out his little pool last week. Tuck thought he was in heaven. He just LOVES water! Maxi is also a little swimmer. Ruby and Shotti want NOTHING to do with water and swimming. Lucy isn't sure yet. She has never experienced anything like a "pool" before. It'll be exciting to see if she is a swimmer at the Lake! And we get to move up to the Lake May 15th!! Wooooo!!! I can't wait. BOAT TIME!
**R.I.P. Callie**
Breathe Easy
I had my monthly CF clinic yesterday. Didn't go great. I figured as much though. For the past week or so I've needed more oxygen and I've been more tired than usual. The extra O2 helps combat the fatigue but its annoying. I hate have no energy to do things. I miss the days I could just spring up from bed in the morning and go go go. Now when I wake up, I have to lay there for 5-10mins, then sit up for 5-10mins, THEN I can get out of bed and move around my room. But I still need to take my time because, my room is located downstairs, so after getting up my first task is a flight of stairs. HOLY MOLY! Hhaha. Its good for me, just tiring. I tend to have a coughing freakout when I get to the top of the stairs. Its ridiculous, I use to be able to run up the stairs, now I can barely walk. So Lame! I coughed up some blood the past 2 days as well. Thats always a great sign, haha. Thankfully it seems to have stopped. My PFTs were down about 8% which isn't good at all, but I actually expected it. My weight was stable which is GREAT! I mean gaining weight would be phenomenal but the fact that I didn't lose any in a month is fantastic news!!
So the game plan is a hospital visit for a clean out. I'll be going in next Monday, the 9th. I have 5 'bugs' in me right now. 3 staph, with MRSA, and 2 pseudos. My pseudos are resistant to EVERYTHING! I love to harbor the worst of the worst, haha. My doc said he is going to try a new med with me, something like, Doripenum? Anyone had that before? He said it has to be dripped in over 4 HOURS 3X A DAY! Holy Hook-up Batman! I guess I'll be getting real cozy with my pole haha. Hopefully it works and kicks some CF-Buggy-Butt! I would like to be hospital free this summer so I can actually enjoy my summer!
I don't have any complaints outside the typical CF whining. I have a family BBQ this sunday to attend. It should be fun. Sunday is also Mother's Day! Not sure what I'm doing for my Mama yet but I'll think of something. May 2nd was my Dads birthday! Happy Birthday Pop! In Tucker news, I brought out his little pool last week. Tuck thought he was in heaven. He just LOVES water! Maxi is also a little swimmer. Ruby and Shotti want NOTHING to do with water and swimming. Lucy isn't sure yet. She has never experienced anything like a "pool" before. It'll be exciting to see if she is a swimmer at the Lake! And we get to move up to the Lake May 15th!! Wooooo!!! I can't wait. BOAT TIME!
**R.I.P. Callie**
Breathe Easy
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