Living with Cystic Fibrosis, or any chronic illness really, makes you appreciate the little things more. I know a lot of other people say that but its true. I never really gave it much thought until I was 16/17. When you're young you don't really have a long term vision of life. Everything is all fun and play, not a lot of responsibility. Well for most kids anyway. It isn't until they hit 15/16/17 that responsibility starts to really creep in and you take notice.
Now that I'm in "end stage Cystic Fibrosis" - which I hate to say or write - there are sooo many really little things I appreciate. Because of where I am in my lung disease I am incredibly dependent on my parents -financially, physically, emotionally. I really never thought THIS would be my life at 26. But it is and I take it all with a grain of salt!
There other day I went grocery shopping - alone! - for the first time since probably February/March. Most people bitch and moan about having to go to the store but I was so excited to do this on my own again. A trip to the grocery store involves making a list - so I'm not wandering too long, packing up the oxygen and figuring out how I'm going to push a shopping cart AND pull an O2 tank. So needless to say it takes a little finagling and some work. Work I'm willing to do and figure out. It took me about an hour and a half to do the whole trip. I was SO exhausted but felt so accomplished after. It was great.
There are lots of things I can't do anymore and hopefully one day - after transplant - I will again. Working is one of them. I'm on Disability so I have a small fixed income. I always TRY - being the key word - to live within those means each month. Thankfully I have my parents to help me out when I can't. In a few months I'll hopefully start paying for my own car insurance. I'm super excited - stupid I know. What a step into adulthood! Leaving my parents plan and starting my own. It will be wonderful. Finally a real step into independence!
So while you all complain about paying your bills I'm excited to have the responsibility to pay mine!
Look out world, I'm growing up!