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Tuesday, January 1, 2013

2012, It was a Roller Coaster

Hello World!

2012 was certainly a roller coaster of a year for me. I spent 2011-2012 New Years in the hospital. And things just got worse and worse as the year went on. I became almost immobile. Using a wheelchair for more things than I wanted to. I would be so exhausted, I'd sleep all the time. I would be in the hospital for 2 weeks and home for 1 then right back in house. By early July I was so sick and weak and lonely and sad and anxious and depressed and losing hope fast that I would make to my 27th birthday.

Then July 22, that magical day, 2 years, 2 months, and 2 days of waiting my beautiful donor graced me with a perfect pair of lungs. My year completely did a 180. Recovering from transplant surgery wasn't easy but after the last few years it felt like a cake walk most days. Sure I had to rebuild a lot of lost muscle, which I'm still working on, but the ability to breathe like a "normal" person is something I can't explain into words.

They say you don't know what you're missing if you've never had it. So the feeling of a "normal" breathe isn't something I can say I missed because I've never had that. When I was finally discharged from the hospital and walked out doors and the sun was shinning, I took the deepest breathe I could and just savored the moment. Its a moment I will NEVER forget. I understand that over time I could take that feeling for granted, but I hope I never do. At the risk of sounding corny, I have to remind people to take pleasure in the small everyday things. They really do mean more.

2012 was a roller coaster for my entire family as well. My Dad went through a very risky surgery to remove his cancer. The surgery was successful but his recovery was long and hard and he is still working on it. He had to start radiation because although all the cancer tumors were gone, they found cancer cells in his body. Most recently my Dad had a major infection. He developed a large abscess and needed to have it drained. When the Dr's put the drain tube in infection leak into his body and caused Septic Storm. Right now he is recovering from that and waiting to hear what the next step will be against this cancer shit. My Dad and the rest of us aren't giving up beating this thing back. Its just taking more power than we anticipated.

My older brother, Jason, who has Cystic Fibrosis too, has had a rough year. He has always been pretty good with his CF and hasn't needed much help from hospital stays and the heavy duty drugs. But in the fall he experienced bleeding in his lungs. He developed a small spot from his aorta that was leaking blood into his lungs. He had to have a dangerous surgery to fix it. They threaded a catheter in his legs up to his lungs and then "glued" the spot shut. They told his he could become paralyzed, have a collapsed lung, brain damage or die if things went wrong. And our CF hospital had only ever done this surgery on 3 other CF people. Luckily the surgery went well and fixed the problem. He had to layed up in the hospital for a week or so but it did the trick.

My younger brother, Ryan, had an uneventful year. He doesn't have CF. But he did have to witness his father suffer from cancer and both his siblings struggle with CF. He really stepped up to the plate and helped us all out. He became a huge support for me in Cleveland and I know he was a support for Jason and my Dad.

As for my Mother. There is just too much to say about her. Shes fantastic. The rock I lean on for EVERYTHING. And the glue that holds this entire family together. She sacrificed her time and sleep to be at the hospital for myself, dad and brother. She flew/drove back and forth from Cleveland to New Hampshire from July-September. She is such an incredible woman. And she suffered a lot of stress this year especially going through 3 life threatening surgeries in 2 months. She is just amazing. A "thank you" is not enough for her. She deserves it all and I intend on trying to give her just that.

2012 was a crazy year for me and my family. Here's to 2013 which will no doubt bring better things. Our family has gone through enough the last 3 years. It needs and wants a break.

I thank and love each one of you that took the time to wish me well, ask me how I'm doing, share a joke, send a funny picture, hope good things for me, and just keep my spirits up through it all. I really don't know where I'd be without you. Doesn't matter if you're just an internet friend and someone I've known forever. I am truly appreciative of all of you. You make me who I am and help keep in the right light. Much love and many thanks.

To my donor, you have made the biggest impact on my life. Thanks is not enough and never will be enough. I promise to you to live life, respect life, pay it forward, and forever celebrate your life on July 22. I truly believe I wouldn't be here today without you. You saved my life and gave me back to my family and friends. You will forever hold a special place in my heart and I can't wait to meet you in heaven many, many years from now.

To paraphrase Justin Bieber "It's a big big world, It's easy to get lost in it, And I'm not ready to call it quits, I know it's hard, believe me, That we can't go nowhere but up"

2013, I'm ready.

Breathe Easy


  1. Great post. Sending you positive vibes for 2013!

  2. I just re-read this and noticed that you started your new life on July 22nd. My dad's birthday is July 21st; he's no longer here to celebrate but I firmly believe good things happen near that day. So I sent him a special thank you because I know he's over the moon for you. :)

  3. Thanks Drew!

    Wow Lisa, thank you so much, sorry for your loss.