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Monday, January 3, 2011


Hello World!

So I am feeling better than my last post, I guess. I really just have different symptoms haha. The incredible back pain I had has passed, Thank God!! Although I have coughed up blood for the past 2 days. I have also had incredible headaches for a few days now. Its not my sinuses but instead feels like my head is being squished in a vice grip! I am short of breath with pretty much everything I do!! That is probably the thing I hate the most. Being short of breath just makes it so I can't do anything and everything takes so much more effort than it should. Sucky!!

I got an appointment today, With my doctor, thank God, because the one I saw on friday in Urgent Care didn't have a clue what to do with me. I always feel so much better when I can see or even just talk to my CF doctor because I have never a a symptom that they haven't seen before. So they have answer for what to do 9.5 out of 10 times! Haha.

But during my appointment I had an elevated heart rate, which means my little ticker is working harder than it needs too! My blood pressure was also high, for me anyway. My PFTs tanked! Which sucked. They went from 38% to 27% in just 3 weeks. Thats a hefty drop. And I have lost 6lbs in the past 3 weeks. Yikes!I had chest x-ray done last Thursday, and we reviewed it. Wow to I have bad posture, haha. And I saw I have a very slight case of scoliosis. DAMN! haha. I need to sit up straighter.

After reviewing the x-ray and going over all my symptoms it was decided I am probably in the first stages of pneumonia. Wonderful! Haha. So I was put on Levaquin a couple days ago and My doctor wants to give it a  couple more days to see if it helps. If I'm still feeling crummy in a few days, off to the hospital I go for some IV medication. Hopfully the antibiotic does the trick!

Breathe Easy


  1. Do you have a feeding tube? Have they discussed that with you since you are losing weight? I'm sorry for the bad appt. Hope the Levaquin works!!!

  2. @Ashley Thanks!!

    @Christy I do have a feeding tube. I run 3-4 cans in overnight and do 3 cans during the day. I've had a feeding tube for a little over a year.