Just Another Day

Hello World!

So how was everyone's Halloween? Mine was pretty boring. Didn't do anything myself. My neighborhood doesn't have many children left in it so my house only got a few trick-or-treaters. I will say I accidentlly scared a little one. He had to be 4 or 5 maybe. We have this hanging skelton in a cage and when you walk by him, he moans and shakes and screams "let me out!" Haha. It terrified the little one, oops! Haha but thats what Halloweens about so I guess it is ok! I did enjoy all the left over candy in our bowl! Yumm!

In other news, I went to my monthly CF clinic today. It went..ok...I guess. My PFTS are still low, in the 30s. But that is good for me. I have been as low as 22% before. Yikes! Lost a couple pounds... thats never good!! So I need to eat up, extra calories! Overall a decent appointment. I have to go back in 2 weeks to see the Diabetes doctor. FUN! Haha. I got a routine eye exam today. My first one. I'm not really a fan of drops and stuff in my eyes. Yuck! But that went well, Perfect Vision!!

The only thing that bothered me today, and has bothered me in the past, is how many times I'm asked "Are you sure you still want to do transplant?" YESSS!! YES YES YES!! I would not have put myself through all this torture if I didn't want a transplant! It really bugs me that they think I'm "giving up" or "not trying" just because maybe I'm having an off day. Sorry I can't shit rainbows and be all smiles EVERYDAY! This is a stressfull situation. I shouldn't have to be "happy" everyday. Waiting is stressfull, being under constant scrutiny is stressfull, having CF in general is STRESSFULL!!! Sometimes I just want to say "get off my back" but I don't. I bite my tongue. Its not really nice to yell at your doctor. And don't get me wrong my doctor is GREAT! I wouldn't want any other. But sometimes he gets on my nerves! O well, I guess it just goes with the territory.

One day I'll have my new lungs and look back on this and read it and laugh. Can't wait for that day!!

Breathe Easy